I still find it quite challenging to find the perfect words to describe my journey. No doubt it has been a roller coaster of emotions, both good and what some may considered bad.  Nevertheless, I am telling it the best way I can. I am sharing my lights, my colors and m...

Today and always I celebrate YOU brave men and women, children alike who suffers from a rare condition. Rare but we do exist! 

A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic, and are present throughou...