I still find it quite challenging to find the perfect words to describe my journey. No doubt it has been a roller coaster of emotions, both good and what some may considered bad.  Nevertheless, I am telling it the best way I can. I am sharing my lights, my colors and m...

Today and always I celebrate YOU brave men and women, children alike who suffers from a rare condition. Rare but we do exist! 

A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic, and are present throughou...

Part of owning my truth is being able to stand tall as I am and affirm that I will not be judged, my journey is beautiful and I am beautifully flawed (publicly). I am aware that I am rare and I am fine with that.

 I realized that I am unique. So I began t...

This conference was certainly one of the best thing that happened to me. It brought me hope, courage, closure, strengths, clarity and purpose. I was one of the presenter along side Rick, my angel. I first introduced myself and how my life has been a roller coaster of p...